May 23, 2013

Webinar with Dr. Amy Smith and her team at the Pediatric Brain Tumor Program

"Childhood brain tumor survivors: caring for the whole child even after cancer treatments have ended"

Once a child has completed treatment for a brain or spinal tumor, what comes next? This week, we hosted a webinar with Dr. Amy Smith, pediatric neuro-oncologist at Arnold Palmer Hospital for Children, and discussed how families make the transition from treatment to long-term follow-up. Dr. Smith and her team at the Pediatric Brain Tumor Program explained some of the ongoing physical, emotional and intellectual challenges that a child might face as a result of their disease and treatment. We also highlighted some of the hurdles that families face when children re-enter the school environment and as the child enters adolescence and adulthood. Learn more about how to help your family navigate this next part of the journey.

Check out this informational webinar below, as Dr. Amy Smith and her team addresses the many concerns and issues revolving around brain tumor survivorship and answers questions submitted by our viewers before and during the live chat.

To learn more about the Brain Tumor Program at Arnold Palmer Hospital, visit the Pediatric Brain Tumor Program page.

Have a question? Ask it below in the discussion box to be submitted and answered by Dr. Amy Smith and her team.

2 Discuss

Discuss: Webinar with Dr. Amy Smith and her team at the Pediatric Brain Tumor Program

  1. avatar
    Paula says:
    May 23, 2013 at 9:22 am

    I have a question about my daughter, she was diagnosed with a pilomyxiod astrocytoma in her midbrain in september of 2008. She recieved radiation for her inoperable tumor. She had complications after including the development of 2 cysts on tumor which required 2 surgeries in 2010 to drain them. Over the last few years she complains of constant eye pain, she says its a burning feeling, and also has a strong sensitivity to light. Often she will end up with a headache when the eye pain becomes worse. She has been on nuerontin without much success and has just started taking a tegretol. Docs can’t seem to find the source of the pain. She has a catheter with a reseviour that the nuerosurgeon is discussing taking out if the source of the pain cannot be found. Do you have any suggestions about the eye pain. Have other children complained about eye/head pain after treatment. I am wondering if this could be a late side effect of radiation. Any input would be appreciated

    • avatar
      Illuminate says:
      May 29, 2013 at 10:25 am


      We have reviewed your question with Dr. Smith and her team, and although we understand your desire to find more answers for your daughter to help resolve her pain, we don’t feel that we can fully address this for you on our blog. Without knowing the specifics of your daughter’s complex medical history, it isn’t possible to offer an accurate medical assessment of her situation. We feel that it is in your daughter’s best interest to resolve this complex issue within the context of a doctor’s care where her medical team has all of the relevant and necessary information available to make the best decision for her.

      If we can help you by offering a second opinion, please call us at 321.841.8588 to make an appointment with our team.

      Wishing you and your family all the best as you continue along this journey.

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